Wed_Feb_27_00:00:45_PST_2019

Yesterday my Macmillan nurse called in early, as she was sat chatting that terrible pain started, I took 60 morphine straight away, it took 20 minutes before it faded in to the back ground, she checked my stats, my oxy had dropped down to 96 but my heart was racing at 127, once the pain settled my 02 had risen to 98 but the heart ad only dropped to 109, my heart s certainly working hard
After that I did have a pain free day, the second half of the borrowed chair arrived so bedtime will be easier
ￂﾠBefore bed I took another tamazepam which helped make me tired, the lift stopped me getting breathless and going to bed was a pleasure
ￂﾠI remember Gary cuddling into me and that was it
ￂﾠI woke at 3
25 wondered whether I needed to visit the loo, but no I told myself to go back to sleep
ￂﾠNext thing it was 7
45, time to get up
ￂﾠNo pain! My colleague from work was coming at 10 and I needed to shower and wash my damp sweaty hair, which I actually managed
ￂﾠAs soon as Claire left Gary had my clothes out ready to change
ￂﾠToday was his first day at pushing me in the wheelchair
ￂﾠWe even managed to get a disabled space outside the hospital door, the area I had to go to was the furthest away in Darlington Hospital, there would be no way I could have walked it
ￂﾠFor his first time handling it he did so well, we didn't run anyone down! My pericardium has fluid, so far it doesn't ￂﾠimpede the top muscle that holds the heart, although there is quite an increase in the volume since the last one last year
ￂﾠI do hate it when they put the sound on and you can hear it beating
ￂﾠAlso my heart isn't where every one else's is anymore so I had to lie strangely for him to get a good scan
ￂﾠI asked about flying for 8 hours, I could tell by his face he didn't think any flying was a good idea but said he would discuss after I got dressed
He discussed the speed of my heart, how he could drain the fluid if the volume starts to cause problems and flying
ￂﾠIf the chemo works maybe 4 hours max, but this will be revised, Gary said no way would we risk it, I reminded him we flew all over when I had it before but didn't know, he said it was different then! ￂﾠI know that I will need some warmth on my bones by April latest
ￂﾠAt least I know he may be able to use a needle to withdraw the fluid, now I will need to monitor if I have those heart attach pains so we know if the fluid is managing to still drain on its own
ￂﾠHe also discussed the high levels of my RBC, if my blood gets to thick, this will stop helping me, at the moment my body is trying to make ways to help my body
Then we went into town, I asked Gary for a pair of earrings for Christmas, he took me to D